Michael and Wendy Wilson

By ALS Association

The House has passed HB 1278, a historic bill that would provide $1 million in funding for ALS Care Services—the first of its kind in the state. This funding would ensure access to multidisciplinary clinics, medical equipment, and care coordination, critical resources that families like Michael and Wendy Wilson’s depend on every day.

ALS, or amyotrophic lateral sclerosis, is a progressive and fatal disease that robs people of their ability to move, eat, and eventually breathe. There is no cure, and access to specialized care is essential to improving quality of life.

For the Wilsons, ALS changed everything. When Michael began experiencing muscle twitches in 2014, he never imagined that just a few years later, he would lose the ability to walk, move his arms, or even brush his teeth without help. Every part of life became a challenge—not just for him, but for his wife, Wendy, who is his full-time caregiver, and their daughter, Londyn, who has grown up balancing everyday teenage life with extraordinary responsibilities.

Last week, Michael was recognized on the Oklahoma House floor for his advocacy efforts for HB 1278, which passed with strong bipartisan support (86-10). The bill would bring desperately needed resources to families like his. Michael’s story highlights why this funding is essential—not just to improve quality of life, but to ensure that no Oklahoman faces ALS alone.

HB 1278 is now advancing through the legislative process, and its passage would mark a major milestone for the ALS community.

More about Michael and Wendy’s journey with ALS: https://www.als.org/blog/life-reimagined-michael-and-wendy-wilsons-als-journey

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